Wednesday, July 17, 2013

Wednesday Update

After finding out that the doctor was well enough to be able to see us today, we packed up in the hopes that he would let us leave. He said even though the ear is a little swollen, that is normal after surgery. He took the drains out which was a bit dramatic....I mean traumatic for Miles and afterward we were allowed to go home. Yay!!

We have to go back next weekend to have the stitches removed and then the doctor will determine when we can come back for the next surgery. We assume it will be sometime in early October. I will post some pictures again once the drain hole bandages come off. But this one was taken yesterday.  It is a bit out of focus, but shows the ear 5 days after surgery. The additional skin you see at the front is what is left from his little ear, and what will become his earlobe in a future surgery. 




Tuesday, July 16, 2013

Tuesday Update


So we made it all the way to Tuesday on this nightmare 
rollercoaster and here is the latest as of Tuesday:

This weekend has been kind of difficult. We have been trying to handle Miles' pain the best we can since he decided he couldn't take the pain meds. He has managed ok with just Tylenol, but I think he has put himself in unnecessary pain in choosing not to take the codeine anymore. He has also had some major issues with constipation. This has also involved a lot of medicines that have been less than pleasant to administer. 

We have been keeping a close eye on Miles' ear and it appears to have been draining more blood and getting more red and swollen, so we texted the doctor a picture and he said he thinks it is okay. Of course we were worried about a possible infection, but the doctor will have to determine that once we go to see him. We were supposed to have our follow up appointment this morning at 9:40 but the doctor's office called and told us that the doctor went in to the emergency room last night with pain and vomiting and the suspected kidney stones. Once they found out he would be able to pass it and wouldn't need surgery, they asked if we could reschedule for tomorrow. We are now stuck here for one more day (hopefully) and should be able to leave tomorrow morning right after our appointment. Tomorrow, with a little bit of luck, the drains will come out and Miles will feel a lot better. 

Today after finding out that we had to stay, we took the kids to the riverwalk downtown. We have been staying at the Ronald McDonald house by the doctor's office and they have wheelchairs you can borrow. We have had one that we have used on and off throughout the last few days which has been very convenient considering Miles has had great difficulty standing upright and walking any more than a few feet. And of course Avery thinks it is her ride too as she squishesd her brother over to sit in the seat next to him. Not knowing what to expect we assumed we would be out and about sightseeing by this weekend not thinking for a moment that Miles' progress would have been this slow. It was good that we finally had a chance to leave the room and get the kids out in the fresh air. We got to the riverwalk during a nice break we had been having from all the rain that started last night. We had only been walking for about 30-40 minutes when the sky opened up again and it started pouring buckets. It lasted for about a half hour and by the time we got back to the car we were all soaked, wheelchair and all. Tonight we have to do laundry, clean our room, pack and get ready to go home tomorrow in case they let us. I am so ready to sleep in my own bed!!

Ice cream break today:

Riverwalk in downtown San Antonio:

Stage 1 after surgery. Miles' right ear:




Ronald McDonald house: