Saturday, July 13, 2013

Friday Update

The internet connection where we are staying is really poor, so I can't post any pictures right now. We are still taking pictures of the kids, but I will have to wait until we get back to put them all up. Miles is doing well. He is still uncomfortable from the rib portion of the surgery. The ear doesn't seem to bother him at all. We keep checking on it and so far so good. Hopefully by tomorrow, he will be up and about more and we can go drive around a little.  He isn't taking much of the pain medicine because he can't stand it, but I do get half a dose in him every 8 hours and alternate that with regular Tylenol and that seems to keep it managable. We are all very tired since we need to clean Miles' drains every four hours and that requires an alarm being set throughout the night. Avery came down with a cold so her night noises consist of alternating between coughing and snoring,  prooving that children are never without their challenges, but outside of that she has been very good through this whole thing. There are several playrooms at the Ronald McDonald House and she has found a lot of new toys to keep her busy and occassionally another child to play with. San Antonio has the River Walk and the Alamo, so maybe if Miles feels better by Monday, we can go and do some sightseeing. Our follow up with the doctor is on Tuesday and if all goes well, we will get to go home after that.  We will still have to return in a week and a half but it will just be for another follow up and we don't have to stay over. Right now he has a protective cup over his ear, bandages on his chest and two drains, one from the ear and one from the chest. If things look good on Tuesday,  the drains will come out and he will just have the cup and bandages to go home in. The bandages will come off shortly after but the cup remains on for six weeks. We are just very ready to go home at this point and hopefully Dr. Bonilla will say everything is good to go next week.

1 comment:

Lisa Buie said...

re: pain meds. Dylan could not take his either. They tasted so bad they made him gag and throw up. He even had a red stain on his bandage where he batted the syringe from my hand. Glad to know it wasn't just us. Dylan took regular Tylenol and one thing that helped was Celebrex. It's the one NSAID that won't cause bleeding and brings down swelling. You might ask Dr. Bonilla about it. You have to open the capsule and pour the powder in a cup, add some flavoring or thawed but undiluted grape juice concentrate, and put in a syringe. You give them half of it at a time. We tried every narcotic pain med and he could not take any, as they taste so vile.